RARE-Bestpractices
A platform for sharing best practices for the management of rare diseases

Coordinated by the Istituto Superiore di Sanitŕ
National Centre for Rare Diseases

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    • RAREGUIDELINE
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Partners

Click on the institution's name for names and a profile of collaborators

 

 

  • Istituto Superiore di Sanitŕ - National Centre for Rare Diseases

  • Jamarau

  • Karolinska Institutet

  • Healthcare Improvement Scotland

  • London School of Economics and Political Science

  • National Research Council

  • EURORDIS, European Organisation for Rare Diseases

  • Associazione per la Ricerca sull'Efficacia dell'Assistenza Sanitaria Centro Cochrane Italiano

  • Universitaetsklinikum Freiburg

  • Bulgarian Association for Promotion of Education and Science

  • Fundación Canaria de Investigación y Salud

  • Universiteit Maastricht - Institute for Public Health Genomics (IPHG)

  • Newcastle University Upon Tyne

  • The European Academy of Paediatrics

  • Instituto de Salud Carlos III

  • Rare Diseases and Orphan Drugs
    An International Journal of Public Health Journal Website Call for Paper Submissions
  • Newsletter
    To know project achievements and events Sign up Newsletter Archive
  • Leaflet
    Concise information about project objectives and participants View Pdf Download Pdf
  • Home
  • Project
    • Project description
    • Workplan
    • Work packages
    • Organization
    • Events
    • Gallery
  • Participants
    • Partners
    • The Advisory Board
    • Collaborations
  • Platform resources
    • RAREGUIDELINE
    • RAREGAP
    • Training activities
    • Training tools
  • Dissemination
  • Conference
    • Programme
    • Speaker & Chairs
    • Presentations
    • Registration
    • Accomodation
    • How to get there
  • News
  • Glossary
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All Rights Reserved - 2022
The RARE-Bestpractices project is funded by the European Union's Seventh Framework Programme. Project Ref.: n° 305690. Sole responsibility lies with the authors and the European Commission is not responsible for any use that may be made of the information contained therein.

© RARE-Bestpractices partners (2013-2022). All rights reserved.