Contact the RARE-Bestpractices Secretariat:

National Centre for Rare Diseases at the Istituto Superiore di Sanità (ISS)
Viale Regina Elena, 299, 00161 Roma, Italy
 

E-Mail: rare-bestpractices@iss.it
Fax.: + 39 06 49904370

Tecnical Support: webmaster@rarebestpractices.eu