Events
Past events
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24 November 2016
RARE-Bestpractices conference24 November 2016
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23 November 2016
The 5th RARE-Bestpractices annual meeting23 November 2016, Istituto Superiore di Sanità, Rome Italy
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14 November 2016
3rd Conference of the International Rare Diseases Research Consortium (IRDiRC)February 8-9, 2017 Paris, France
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14 November 2016
The 4th Conference of Undiagnosed Diseases Network International16-17 November 2016 Tokyo, Japan
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25 October 2016
RARE-Bestpractices workshop at INSERM in Paris
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16-17 June 2016- Freiburg
RARE-Bestpractice pilot guidelinePanel meeting for guideline on sickle cell disease í
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26 May 2016
RARE-Bestpractices at the EURORDIS membership meeting 201626 May 2016
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27 April 2016-Barcelona
RARE-Bestpractices pilot guidelinePanel meeting of guideline of catastrophic antiphospholipid syndrome
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29 -30 May 2015
EURORDIS Membership MeetingMadrid, Spain
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22 May 2015
RD-CONNECT Workshop data linkage and ontologies24-25 September 2015,Rome National Centre for Rare Diseases, Istituto Superiore di Sanità
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22 May 2015
Guidelines International Network Conference. "Engaging all stakeholders. Guidelines from a societal perspective"7-10 October 2015, Amsterdam
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21 May 2015
2nd conference on European Reference Networks8-9 October 2015, Lisbon
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21 May 2015
3rd International summer school on rare disease and orphan drug registries21-23 September 2015, Rome National Centre for Rare Diseases, Istituto Superiore di Sanità
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See the "flash report" of the 4th meeting
Commission expert group on rare diseasesLuxembourg, 12-13 March 2015
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19 -20 March 2015
3rd RARE-Bestpractices Annual MeetingRome, Italy
- 28 February 2015 Day-by-day, hand-in-hand
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17-20 September 2015
European Academy of Paediatrics Congress and MasterCourse 2015Oslo, Norway
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5 January 2015
G-I-N Conference "Engaging all stakeholders. Guidelines from a societal perspective"Abstract Submission Opens
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July 2014
RARE Journal - The 3rd issue is online
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19 -20 March 2015
3rd RARE-Bestpractices Annual MeetingRome, Italy
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24-25 November 2014
III INTERNATIONAL EPIRARE WORKSHOP - Rare disease and orphan drug registriesRome, Italy
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16-17 October 2014
AGREE WorkshopEdinburgh, United Kingdom
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14 October 2014
Future EU Agenda on quality of health care with a special emphasis on patient safety - Final opinionRome, Italy
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20 March 2014
RARE-Bestpractices annual meeting20-21 March 2014 Istituto Superiore di Sanità, Rome Italy
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19-20 November 2014
Fourth meeting of The COMET (Core Outcome Measures in Effectiveness Trials) InitiativeRome, Italy
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11-12 October 2013
Second workshop for guideline methodologyUniversity of Freiburg, Freiburg Germany
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28-29 May 2013
RARE-Bestpractices meetingLondon School of Economics and Political Science, London United Kingdom
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12 February 2013
First workshop for guideline methodologyIstituto Superiore di Sanità, Rome Italy
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11-12 February 2013
Rare-Bestpractices kick off meetingIstituto Superiore di Sanitá, Rome Italy