Jo Auld (MBA, Director JAMARAU) is a professional administrator with extensive experience in business analysis, process engineering and system development. In addition to several years experience in policy management, Jo has successfully implemented new systems and processes for individual companies and worldwide consortia. She has been working to advance treatment and care for patients with rare diseases since joining the EU-funded TREAT-NMD project in 2008. Between 2008 - 2010 Jo also coordinated a national study into Quality of Life for NMD patients and continues to manage the Registry of Outcome Measures, which she is currently looking to expand to provide coverage and support research into more rare diseases.
In the RARE-Bestpractices project, she acts as WP2 leader (Infrastructure) and as a member of the Steering Committee.