RARE-Bestpractices
A platform for sharing best practices for the management of rare diseases

Coordinated by the Istituto Superiore di Sanitą
National Centre for Rare Diseases

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    • RAREGUIDELINE
    • RAREGAP
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    • Training tools
  • Dissemination
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Training tools

Tutorial of AGREE II instrument on guidelines for rare disease. Application on a Guideline

 

Video Tutorial explains what information is available in RareGUIDELINE and how to use the database

 

Video Tutorial explains what information is available in RareGAP and how to use the database

 

The RARE-Bestpractices Glossary

 

  • Rare Diseases and Orphan Drugs
    An International Journal of Public Health Journal Website Call for Paper Submissions
  • Newsletter
    To know project achievements and events Sign up Newsletter Archive
  • Leaflet
    Concise information about project objectives and participants View Pdf Download Pdf
  • Home
  • Project
    • Project description
    • Workplan
    • Work packages
    • Organization
    • Events
    • Gallery
  • Participants
    • Partners
    • The Advisory Board
    • Collaborations
  • Platform resources
    • RAREGUIDELINE
    • RAREGAP
    • Training activities
    • Training tools
  • Dissemination
  • Conference
    • Programme
    • Speaker & Chairs
    • Presentations
    • Registration
    • Accomodation
    • How to get there
  • News
  • Glossary
Legal Notice | Cookie | Credits
All Rights Reserved - 2017
The RARE-Bestpractices project is funded by the European Union's Seventh Framework Programme. Project Ref.: n° 305690. Sole responsibility lies with the authors and the European Commission is not responsible for any use that may be made of the information contained therein.

© RARE-Bestpractices partners (2013-2017). All rights reserved.