(MD, PhD, MPH) leads a research group at the Government of the Canary Islands responsible of the Regional Health Plan, Health Survey and Health Technology Assessment. The group counts with 20 researchers, is multidisciplinary (economists, epidemiologists, psychologists, sociologists, statitician), and combines strengths in quantitative and qualitative methods. Currently, the group is part of the Spanish Network for Health Technology Assessment as well as the National Network of Health Services Research in Chronic Diseases (REDISSEC), funded by the Instituto de Salud Carlos III. The main research lines are focused on costs of illness, health related quality of life, economic evaluations and patient empowerment in both common and rare chronic diseases. Assessment of telemedicine based services and of complex interventions to transfer new knowledge are emergent lines. Along 2009-2012 the group has participated in more than 40 projects (8 funded by the European Commission), leading 30 of them and receiving more than 5M€ of funding. During this period the group has published 78 papers, 60 of them with IF. Most of the groups’ research findings are used to support decision making at regional and national level (HTA reports), some others have been used to develop new screening programs (RETISALUD) or even have been registered at the Spanish Intellectual Property Office (OCTAL).
(MPsych, PhD) is working at the Evaluation Unit of the Canary Islands Health Service in Spain. She is trained as a Clinical Psychologist, and received her PhD in Clinical and Health Psychology. She completed a research fellowship (postdoctoral training) at the Mayo Clinic focusing on shared decision making and health services research. She is collaborating with others Agencies for Health Technologies Assessment in Spain and with the Ministry of Health, Social Services and Equality for the National Health System and she is also member of REDISSEC (Health Services Research on Chronic Patients Network) in Spain. She has also participated in other European (EUROPLAN, BURQOL-RD) and national research projects on rare diseases (Degenerative Ataxias, Amyotrophic Lateral Sclerosis…).
Maria M. Trujillo-Martín
Maria M. has a background in Chemistry (PhD). She is a researcher at Fundación Canaria de Investigación y Salud (FUNCIS) in collaboration with the Servicio de Evaluación del Servicio Canario de Salud (SESCS), where she has been involved in evidence synthesis in healthcare since May 2007. Maria’s research interests include rare diseases, methodological development of systematic reviews and methods of patient involvement in research. She has experience in the coordination and elaboration of health technology assessment (HTA) reports, consensus conferences and consultation processes to patients. She has collaborated on various National and European research projects on health services such as “Social Economic burden and health-related quality of life in patients with rare diseases in Europe” (BURQOL-RD) under the 2nd Programme of Community Action promoted by the DG Sanco. She is currently principal investigator (PI) of a three year project funded by Instituto de Salud Carlos III (ISCIII), describing the pattern of health care utilization of patients who have survived colorectal, breast and prostate cancer and evaluating their health-related quality of life and the self-perceived quality of care received. She is also involved, as methodological coordinator, in the developing of a clinical practice guideline on systemic erythematosus lupus. As part of the Canarias-Node (FUNCIS-SESCS), she is member of the spanish health service research network on chronic diseases Red de Investigación en Servicios de Salud en Enfermedades Crónicas (REDISSEC) which launched in November 2012.
Jeanette Pérez Ramos is Psychologist, Diploma of Advanced Studies, and Master in Clinical Psychology and Health by the University of La Laguna (Tenerife, Spain). She works like researcher for the Canarian Foundation of Health and Research (FUNCIS), for the Canary Islands Health Service, from March 2006. She has participated in research projects on rare diseases, and health related quality of life, although her current scientific activity is more focused on Shared Decision Making, developing and evaluating patient decision aids for chronic medical conditions.
Ana Toledo Chávarri
(BSocSc, PhD) is a researcher at Canary Foundation for Health Care Research (FUNCANIS) in collaboration with the Evaluation Unit of the Canary Islands Health Service (SESCS) in Spain. She is trained in Sociology and Social Anthropology and is currently completing a Master in Public Health. She has experience in research people’s perspective of illness including eliciting their experiences, values and preferences to contribute to health technology assessment (HTA) and clinical practice guidelines.
Tasmania del Pino Sedeño
(MPsych, PhD) is a researcher at Canary Foundation for Health Care Research (FUNCANIS) in collaboration with the Evaluation Unit of the Canary Islands Health Service (SESCS) in Spain. She is trained as a Clinical Psychologist, and received her PhD in Clinical and Health Psychology. She has experience in the elaboration of health technology assessment (HTA) reports, consensus conferences, consultation processes to patients and methodological development of clinical practice guidelines.