Work Packages
- Work Package 1 - Scientific coordination, networking
- Work Package 2 - Platform infrastructure
- Work Package 3 - Agree upon methodology for production of guidelines on clinical management of rare diseases
- Work Package 4 - Collection of best practices and research recommendations on rare diseases
- Work Package 5 - Rare diseases technologies and value assessment
- Work Package 6 - Dissemination
- Work Package 7 - Collaboration with the International Rare Diseases Research Consortium (IRDiRC)
- Work package 8 - Project management