RARE-Bestpractices
A platform for sharing best practices for the management of rare diseases

Coordinated by the Istituto Superiore di Sanità
National Centre for Rare Diseases

Partners

Karolinska Institutet

Thomas Sejersen

Kristina Sejersen

Désirée Gavhed

Rare Diseases and Orphan Drugs
An International Journal of Public Health Journal Website Call for Paper Submissions
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Leaflet
Concise information about project objectives and participants View Pdf Download Pdf