Events

 

 

Past events

  • 24 November 2016
    RARE-Bestpractices conference
    24 November 2016
  • 23 November 2016
    The 5th RARE-Bestpractices annual meeting
    23 November 2016, Istituto Superiore di Sanità, Rome Italy
  • 14 November 2016
    3rd Conference of the International Rare Diseases Research Consortium (IRDiRC)
    February 8-9, 2017 Paris, France
  • 14 November 2016
    The 4th Conference of Undiagnosed Diseases Network International
    16-17 November 2016 Tokyo, Japan
  • 25 October 2016
    RARE-Bestpractices workshop at INSERM in Paris
  • 16-17 June 2016- Freiburg
    RARE-Bestpractice pilot guideline
    Panel meeting for guideline on sickle cell disease í
  • 26 May 2016
    RARE-Bestpractices at the EURORDIS membership meeting 2016
    26 May 2016
  • 27 April 2016-Barcelona
    RARE-Bestpractices pilot guideline
    Panel meeting of guideline of catastrophic antiphospholipid syndrome
  • 29 -30 May 2015
    EURORDIS Membership Meeting
    Madrid, Spain
  • 22 May 2015
    RD-CONNECT Workshop data linkage and ontologies
    24-25 September 2015,Rome National Centre for Rare Diseases, Istituto Superiore di Sanità
  • 22 May 2015
    Guidelines International Network Conference. "Engaging all stakeholders. Guidelines from a societal perspective"
    7-10 October 2015, Amsterdam
  • 21 May 2015
    2nd conference on European Reference Networks
    8-9 October 2015, Lisbon
  • 21 May 2015
    3rd International summer school on rare disease and orphan drug registries
    21-23 September 2015, Rome National Centre for Rare Diseases, Istituto Superiore di Sanità
  • See the "flash report" of the 4th meeting
    Commission expert group on rare diseases
    Luxembourg, 12-13 March 2015
  • 19 -20 March 2015
    3rd RARE-Bestpractices Annual Meeting
    Rome, Italy
  • 28 February 2015 Day-by-day, hand-in-hand
  • 17-20 September 2015
    European Academy of Paediatrics Congress and MasterCourse 2015
    Oslo, Norway
  • 5 January 2015
    G-I-N Conference "Engaging all stakeholders. Guidelines from a societal perspective"
    Abstract Submission Opens
  • July 2014
    RARE Journal - The 3rd issue is online
  • 19 -20 March 2015
    3rd RARE-Bestpractices Annual Meeting
    Rome, Italy
  • 24-25 November 2014
    III INTERNATIONAL EPIRARE WORKSHOP - Rare disease and orphan drug registries
    Rome, Italy
  • 16-17 October 2014
    AGREE Workshop
    Edinburgh, United Kingdom
  • 14 October 2014
    Future EU Agenda on quality of health care with a special emphasis on patient safety - Final opinion
    Rome, Italy
  • 20 March 2014
    RARE-Bestpractices annual meeting
    20-21 March 2014 Istituto Superiore di Sanità, Rome Italy
  • 19-20 November 2014
    Fourth meeting of The COMET (Core Outcome Measures in Effectiveness Trials) Initiative
    Rome, Italy
  • 11-12 October 2013
    Second workshop for guideline methodology
    University of Freiburg, Freiburg Germany
  • 28-29 May 2013
    RARE-Bestpractices meeting
    London School of Economics and Political Science, London United Kingdom
  • 12 February 2013
    First workshop for guideline methodology
    Istituto Superiore di Sanità, Rome Italy
  • 11-12 February 2013
    Rare-Bestpractices kick off meeting
    Istituto Superiore di Sanitá, Rome Italy