News and Events - Guidelines for Public Comment
RARE-Bestpractices Conference
Visit RAREGAP! The RARE-Bestpractices resources collates validated research recommendations for diagnosis and treatment of rare diseases. They are presented alongside information on ongoing trials
Visit RAREGUIDELINE! It is a RARE-Bestpractices platform resource which brings together health care guidelines on rare diseases
RARE-Bestpractices promotes communication on the clinical management of rare diseases by disseminating trustworthy best practice guidelines globally
News and Events
- Open comment period
- Statement of collaboration signed
- Video Tutorials are now available on RARE-Bestpractices platform
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Rare Diseases and Orphan DrugsAn International Journal of Public Health Journal Website Call for Paper Submissions
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LeafletConcise information about project objectives and participants View Pdf Download Pdf