Value assessment of orphan drugs

Health Technology Assessment (HTA) is playing an increasingly crucial role in the process of appraising and reimbursing medical technologies across Europe. While HTA generally relies on a robust estimation of the clinical cost-effectiveness of a new technology...

RARE-Bestpractices AGREE II workshop

Healthcare Improvement Scotland facilitated a workshop in Edinburgh on the 16th and 17th of October 2014 to explore the utility of the AGREE II tool to appraise the methodological quality of rare disease guidelines. The AGREE II tool uses a set of criteria to assess how well a published clinical …

RARE-Bestpractices presence at conferences

The team from Healthcare Improvement Scotland have had a busy summer promoting RARE-Bestpractices. In July Michele Hilton Boon and Jan Manson attended the Chartered Institute of Library and Information Professionals annual Health Library Group conference to Oxford, England and presented a well …

2nd IRDiRC Conference Shenzhen

7 – 9 November, 2014 Shenzhen, China The second conference of the International Rare Diseases Research Consortium (IRDiRC) was held in China on 7 - 9 November 2014. Overall aim of the conference was promoting international collaborations in the field of rare diseases involving Chinese researchers …

Engaging with patients

Healthcare guideline development is usually driven by national healthcare organisations and professional associations and mainly focused on the management of common conditions. However, in order to have recommendations to support decisions for the management of rare diseases, patient organisations …

RARE-Bestpractices welcomes new participants

There have been some changes in the Healthcare Improvement Scotland team with Jan Manson securing a new role with the Scottish Medicines Consortium and Michele Hilton Boon leaving to undertake a PhD at Glasgow University.  Best wishes for Jan and Michele for these new endeavours and special thanks …