Visit RAREGUIDELINE! The RARE-Bestpractices database of health care guidelines for rare diseases
RAREGUIDELINE is designed to be a one stop shop for all things related health care guidelines for rare diseases. For those looking for guidelines, RAREGUIDELINE is a publicly searcheable database with a number of search and browse options.
Documents for inclusion in the database are identified through a structured process of searching known sources of guidelines including existing guideline clearing houses (the National Guideline Clearing House in the US – www.guidelines.gov), organisations such as Guidelines International Network (G-I-N), and Orphanet.
Furthermore guidelines are appraised for credibility using a validated tool AGREE II thereby allowing those using the database to identify which guidelines are of high credibility.
Anyone interested in guideline development will also benefit from a number of tools that support the collection of information, consultation and collaboration.
RAREGUIDELINE is available at: